Search found 129 matches

by Alan
Tue May 21, 2013 2:38 pm
Forum: KD Stories
Topic: 16 year old Heart Attack
Replies: 6
Views: 3779

Re: 16 year old Heart Attack

JakesBigSis, I am so sorry to hear about your brother. And the short answer to your question is yes, there are people who have had KD that have had heart attacks. Just out of curiousity, so your brother had KD 8 years ago, in 2005? Was he diagnosed with KD and treated with IVIG back when he had KD o...
by Alan
Fri Mar 29, 2013 7:11 am
Forum: Activities & Events
Topic: 10K-5K in San Antonio-I'm intrested in starting
Replies: 1
Views: 2505

Re: 10K-5K in San Antonio-I'm intrested in starting

Edie,

You can contact the KD Foundation by emailing info@kdfoundation.org.

Alan
by Alan
Mon Mar 25, 2013 9:33 am
Forum: Activities & Events
Topic: KD on Grey's Anatomy - March 28, 2013
Replies: 1
Views: 2508

Re: KD on Grey's Anatomy - March 28, 2013

Don't forget to watch Greys Anatomy this Thursday night for the KD episode. Tell your friends and family, post about it on Facebook, get the word out. It could save a childs life. This is a great opportunity to bring Kawasaki Disease into the public eye. Go to http://www.kdfoundation.org to donate w...
by Alan
Mon Mar 25, 2013 9:27 am
Forum: KD Stories
Topic: 3 month old IVIG resistant
Replies: 9
Views: 5355

Re: 3 month old IVIG resistant

Shelley, My son is 11 years post KD now. He had aneurysms on 3 of his coronary arteries after having KD. It took about 9 years for them to come back to what is considered "normal' size. He was on aspirin until he was 7. He still sees the cardiologist every year for an EKG and cardiac echo and he has...
by Alan
Wed Mar 20, 2013 2:30 pm
Forum: General Discussion
Topic: Need advice from parents who had a baby with KD & aneurysm
Replies: 4
Views: 1749

Re: Need advice from parents who had a baby with KD & aneury

Hi, My son had KD at 6 weeks old and had aneurysms as a result. He was on aspirin also until he was 7. Fortunately we were in a position at the time where my wife did not work and she was able to stay home with him and we limited his exposure to others for the next 6 months. Because he had KD in Sep...
by Alan
Tue Mar 12, 2013 10:26 am
Forum: KD Stories
Topic: 3 month old IVIG resistant
Replies: 9
Views: 5355

Re: 3 month old IVIG resistant

Shelley, Your story sounds very similiar to my sons. He was 6 weeks old when he had back in 2001. He was IVIG resistant and received 4 rounds IVIG and 2 of steriods before his fever came down to an acceptable level. He also went into heart failure because of fluid build up and had to be given a dieu...
by Alan
Mon Nov 12, 2012 2:21 pm
Forum: Activities & Events
Topic: KE Symposium San Diego
Replies: 3
Views: 3286

Re: KE Symposium San Diego

The Parent Symposium and Gala fundraiser are this weekend in San Diego. See the foundation website for info and how to register for the symposium and see this web site for info on the gala. http://kdfgala.org/.
by Alan
Tue Sep 18, 2012 12:43 pm
Forum: Activities & Events
Topic: KE Symposium San Diego
Replies: 3
Views: 3286

Re: KE Symposium San Diego

There is a Parent Symposium and Gala fundraiser planned for Nov 17, 2012 in San Diego California.

Please see the KD Foundation website http://www.kdfoundation.org for more details.


Alan
by Alan
Mon Aug 27, 2012 10:18 am
Forum: General Discussion
Topic: Aneurysm regression -I'm confused and scared
Replies: 1
Views: 1157

Re: Aneurysm regression -I'm confused and scared

Littlebean, I can't give you medical advice as I am only a parent of a child who had KD but I can give you some of our experience which is similar to your own. That being said, every child is different and reacts differently to KD. My son was 6 weeks old when he had KD back in 2001. He ended up with...
by Alan
Tue Jun 05, 2012 9:17 am
Forum: Activities & Events
Topic: 2012 INTERNATIONAL KD SYMPOSIUM in Japan
Replies: 9
Views: 5757

Re: 2012 INTERNATIONAL KD SYMPOSIUM in Japan

Just an FYI, the next International Symposium is being planned for Feb 2015 in Hawaii. A Parent Symposium portion is also being planned in addition to the normal activites. I will put any updates on the forum as they become available.
by Alan
Tue Jun 05, 2012 9:04 am
Forum: General Discussion
Topic: Health Complications Years After KD
Replies: 4
Views: 2010

Re: Health Complications Years After KD

I would give you the same advice that Marissa was given several years ago. Go see a cardiologist, preferably one that is familiar with KD if you can. Even people who had KD and did not have "complications" are now being advised to have regular cardiology visits. There is only a little research about...
by Alan
Fri Apr 27, 2012 10:18 am
Forum: General Discussion
Topic: Question on permitted activities with KD
Replies: 5
Views: 1423

Re: Question on permitted activities with KD

I think it was 7 years before they were considered within normal range again. So it was about 3 years ago.
by Alan
Wed Apr 25, 2012 8:19 am
Forum: General Discussion
Topic: Question on permitted activities with KD
Replies: 5
Views: 1423

Re: Question on permitted activities with KD

Hi, My son had KD at 6 weeks old and also had 3 aneurysms that have now come back within normal range after 10 years. His cardiologist had always wanted him to be active but he recommended that he not play contact sports where he could he hit by other players or hard objects in the chest. There are ...
by Alan
Mon Apr 16, 2012 3:33 pm
Forum: KD Stories
Topic: Long-term effects (Adults who have had KD)
Replies: 8
Views: 3619

Re: Long-term effects (Adults who have had KD)

Swimmergirl, My son is 10 years old now. He had KD when he was just 6 weeks old. He had the stress test last summer. They did an MRI of his heart and then injected the radioactive material. Then they had him ride an exercise bike while monitoring his heart and breathing at the same time. They had hi...
by Alan
Thu Apr 12, 2012 7:59 am
Forum: KD Stories
Topic: Long-term effects (Adults who have had KD)
Replies: 8
Views: 3619

Re: Long-term effects (Adults who have had KD)

Since I am not a doctor I can't really say what type of test would be best, but the cardiologist would know what they want to do. I would guess that they would start with an EKG and then determine what other tests they wanted. I would think that eventually a stress test would be something you would ...