Search found 1535 matches

by Momcat
Fri Sep 12, 2014 6:52 pm
Forum: General Discussion
Topic: Borderline Elevated Cholesterol - Strong Family History
Replies: 2
Views: 1140

Re: Borderline Elevated Cholesterol - Strong Family History

I'd ask a cardiologist about statins. My daughter had open heart surgery from results of KD and I know that even though the echos may come back without showing damage to the arteries that microscopically there can be damage. My daughter is now on a small dose statin since her surgery and she is only...
by Momcat
Fri Sep 12, 2014 6:45 pm
Forum: General Discussion
Topic: Paige, my daughter, open heart surgery Mar 19
Replies: 5
Views: 2961

Re: Paige, my daughter, open heart surgery Mar 19

Langril-
We are in Oregon. However another Paige, same age of 17 just had double bypass surgery in California. I can get you in contact with her mom if you wish!
Sandy
by Momcat
Fri Sep 12, 2014 6:42 pm
Forum: General Discussion
Topic: Help! Can aneurysms grow after regression??
Replies: 2
Views: 739

Re: Help! Can aneurysms grow after regression??

My daughters aneurysms never did regress, but they did something very unusual and continued to expand over the years. She started with a 9mm in the LCDA and about a 5-6 (if I remember right) in the RCA. She was 6 years old when she had KD. She just had a triple bypass this year and the LDCA was 26.5...
by Momcat
Tue Apr 22, 2014 9:33 pm
Forum: General Discussion
Topic: Kd without fever but every symptom
Replies: 1
Views: 992

Re: Kd without fever but every symptom

There have been a few cases without fever. I know one parent on here had posted it a long time ago. Let me know if you need research on it and I will find out.
Sandy
by Momcat
Tue Apr 22, 2014 9:30 pm
Forum: General Discussion
Topic: AFTER IVIG
Replies: 1
Views: 863

Re: AFTER IVIG

There have been very few cases of KD without fever, but it has happened. Watch for flares, keep taking temps. I hope they are checking his CRP levels. Yes, my daughter had a rash on her leg for YEARS. At times it would flare and then sort of go away. It didn't tan for years, now she is 17 and it is ...
by Momcat
Fri Mar 28, 2014 2:47 pm
Forum: General Discussion
Topic: Paige, my daughter, open heart surgery Mar 19
Replies: 5
Views: 2961

Paige, my daughter, open heart surgery Mar 19

Our family traveled to UCLA Ronald Reagan Medical Center last week so Paige could have her open heart surgery. We were blessed enough to have it done by one of the best heart surgeons in the world, Dr. Laks. He was hoping to use CorMatrix to repair her giant aneurysms. She went into surgery around 9...
by Momcat
Fri Mar 14, 2014 10:28 pm
Forum: General Discussion
Topic: Re: New Heart Surgery Date and New Technique
Replies: 3
Views: 1780

Re: New Heart Surgery Date and New Technique

The surgery has been put back one day....to Weds, March 19th. She feels like she is finally going to get it done, but she will be VERY EMOTIONAL right before the surgery. We're hoping this is very successful so other KD kids with big aneurysms can benefit with the same surgery. Putting off a bypass ...
by Momcat
Thu Mar 13, 2014 12:30 am
Forum: General Discussion
Topic: Re: New Heart Surgery Date and New Technique
Replies: 3
Views: 1780

Re: New Heart Surgery Date and New Technique

I am copying and pasting from the KD support site on FB: The time has come....again. This time my daughter IS having her open heart surgery. She will have it done at UCLA on March 18th-Tuesday. The surgeon is hoping to use this new bio-material on her arteries after he reduces the sizes of her aneur...
by Momcat
Thu Feb 06, 2014 1:43 am
Forum: General Discussion
Topic: Paige's Aneurysms Repaired tomorrow at UCLA
Replies: 5
Views: 1154

Re: Paige's Aneurysms Repaired tomorrow at UCLA

It's been INSANE. VERY hard on the nerves, sleep, etc. Her surgery is rescheduled for March 18th.

Sandy
by Momcat
Wed Jan 15, 2014 1:18 am
Forum: General Discussion
Topic: Paige's Aneurysms Repaired tomorrow at UCLA
Replies: 5
Views: 1154

Re: Paige's Aneurysms Repaired tomorrow at UCLA

Surgery was canceled. We were there a week, got bumped for a couple of transplants, Paige was admitted, we said our goodbyes and went to the waiting room. I was called back into the room and given not such great news about one of her tests and they had to cancel the surgery. We're back in Oregon aft...
by Momcat
Mon Jan 13, 2014 12:04 am
Forum: General Discussion
Topic: Paige's Aneurysms Repaired tomorrow at UCLA
Replies: 5
Views: 1154

Paige's Aneurysms Repaired tomorrow at UCLA

It's been a long 11 years since Paige got KD. She has two very giant aneurysms - one in her LDCA that is 26.5mm and is round and another that is in her RCA that is a couple of cm long andI can't even remember-about 14mm wide (?). We were able to talk to Dr. Laks here at UCLA on Friday and see a 3D i...
by Momcat
Fri Jan 03, 2014 8:38 pm
Forum: General Discussion
Topic: Paige update - future surgery
Replies: 11
Views: 2926

Re: Paige update - future surgery

Well, the date is almost here. Blood tests and others today. More on the 8th I think. Not sure what time the surgery is or the 9th how long it will last. I am trusting God at this point and counting on the prayers of any who wish to pray for Paige!! THANKS! I'll try to let you guys know what kind of...
by Momcat
Fri Dec 06, 2013 11:44 pm
Forum: General Discussion
Topic: About Resistant Kawasaki
Replies: 1
Views: 764

Re: About Resistant Kawasaki

I am not sure what Omncortil is (?) Our daughter had a very drug resistant case of KD. As she continued with fevers they put her on drip IV steroid for 3 days after all of the IVIG's and Remicade, etc did not work. She was put on drip IV steroids for 3 days and it brought the CRPs down. After return...
by Momcat
Fri Dec 06, 2013 11:39 pm
Forum: General Discussion
Topic: Paige update - future surgery
Replies: 11
Views: 2926

Re: Paige update - future surgery

Obamacare temporarily messed up the timing, but as of now we will be headed to UCLA for the surgery on Jan 9th. Not feeling 100% about this yet.........
by Momcat
Sat Oct 19, 2013 1:48 am
Forum: KD Stories
Topic: 36 years after KD and 3 years after CABG
Replies: 4
Views: 1669

Re: 36 years after KD and 3 years after CABG

Thank you so much for this post!