Search found 5 matches

by AuntJulie
Tue Apr 10, 2012 3:04 am
Forum: General Discussion
Topic: LIFELONG FOLLOW-UP CARE FOR ALL
Replies: 16
Views: 5415

Re: LIFELONG FOLLOW-UP CARE FOR ALL

Well said! Thank you from the bottom of my heart! My nephew past away at the age of 26 unexpectedly due to artery blockages related to KD. We were not informed of the absolute importance of follow up cardiac after KD. I see so many others now saying "they too are in the clear" and I believe they are...
by AuntJulie
Tue Apr 10, 2012 2:37 am
Forum: General Discussion
Topic: In Loving Memory~David "DJ"
Replies: 7
Views: 1643

Still in Shock-Information on Remembering David "DJ"

It is my opinion that Warning Notifications updating ALL KD patients of the importance of follow-up cardiac care is needed. I can't tell you how many times after DJ's passing now that I've read or heard these very frighting words "I had KD a long time ago, but now I'm all better now" that is exactly...
by AuntJulie
Wed Mar 14, 2012 1:31 am
Forum: General Discussion
Topic: In Loving Memory~David "DJ"
Replies: 7
Views: 1643

Re: Remembering David "DJ"

@Practicing Patience thank you so much for your kind words. It warms my heart to hear you say you felt DJ as a wise & gentle spirit-you could not have described him better! From reading everyone's stories here on the forum, we are all reminded of how fragile life is. Very Best Wishes~Julie
by AuntJulie
Tue Mar 13, 2012 4:20 pm
Forum: General Discussion
Topic: In Loving Memory~David "DJ"
Replies: 7
Views: 1643

In Loving Memory~David "DJ"

I wanted to share a bit of DJ's life with KD forum family. He was a such beautiful soul, a bright light in our lives & everyone who knew him loved him dearly. Our bright & sunny boy who grew to be a loving man and gone too soon RIP 1983-2010. I feel he's watching over & rooting everyone on in hopes ...
by AuntJulie
Mon Mar 12, 2012 5:13 pm
Forum: KD Stories
Topic: 2 year old Jack/carpet and furniture cleaned 3 days prior
Replies: 13
Views: 9297

Re: 2 year old Jack/carpet and furniture cleaned 3 days prio

My nephew past away in 2010 unexpectedly at the age of 26 from KD. He'd been diagnosed in Denver back in the 80's as a baby. Getting the diagnosis back then was extremely difficult because just like today this illness is so often over looked & difficult to diagnose in time to receive treatment that ...