Search found 441 matches

by Nancy
Tue Jan 23, 2018 2:25 pm
Forum: General Discussion
Topic: 14 years after KD concerns
Replies: 3
Views: 25

Re: 14 years after KD concerns

hi

is the original pediatric cardiologist who treated her still around to contact ?

If not, have her see any pediatric cardiologist for an eval

nancy
by Nancy
Tue Jan 23, 2018 2:23 pm
Forum: KD Stories
Topic: Long term joint pain
Replies: 16
Views: 6707

Re: Long term joint pain

hi

Has she seen a pediatric rheumatologist ?

nancy
by Nancy
Mon Jan 22, 2018 4:03 pm
Forum: General Discussion
Topic: 14 years after KD concerns
Replies: 3
Views: 25

Re: 14 years after KD concerns

hi

has she seen a cardiologist ? GP won't know enough about this.,..

nancy
by Nancy
Sat Jan 20, 2018 3:54 pm
Forum: General Discussion
Topic: IN NEED OF HELP/ADVICE!
Replies: 6
Views: 86

Re: IN NEED OF HELP/ADVICE!

hi sorry you haven't gotten more answers from the docs :( Is he at a Children's Hospital, being seen by a pediatric cardiologist ? A regular hospital or community hospital is just equipped to diagnose or treat Kawasaki Disease. An echo doesn't guarantee a diagnosis of KD...but, it does check for any...
by Nancy
Fri Jan 19, 2018 10:45 pm
Forum: General Discussion
Topic: IN NEED OF HELP/ADVICE!
Replies: 6
Views: 86

Re: IN NEED OF HELP/ADVICE!

hi

Has he red eyes, strawberry tongue ? Have they checked inflammation markers in lab work ? No specific test for KD, but
certain lab values will be elevated. Have they done an echocardiogram of his heart ?

nancy
by Nancy
Fri Jan 19, 2018 12:48 pm
Forum: General Discussion
Topic: IN NEED OF HELP/ADVICE!
Replies: 6
Views: 86

Re: IN NEED OF HELP/ADVICE!

hi

symptoms do not show up all at once....can develop symptoms over multiple days
most significant symptom is fever that does not go away and doesn't respond to tylenol or ibuprofen

good luck :)

PS my condolences on your miscarriage...I remember how sad I felt

Nancy
by Nancy
Wed Dec 13, 2017 12:42 pm
Forum: General Discussion
Topic: Are low-grade fevers normal in recovery
Replies: 9
Views: 2793

Re: Are low-grade fevers normal in recovery

docs don't consider 99-100 to be classified as "fever"

best
nancy
by Nancy
Fri Sep 22, 2017 7:50 pm
Forum: General Discussion
Topic: My son passed away
Replies: 5
Views: 774

Re: My son passed away

There are no words for the loss of a child...but, know that my mother's heart goes out to you in your tragedy.
I cannot imagine what you are going through...but, hope that memories of his life with you live in your heart
forever and somehow sustain you in your grief

with deepest sympathy,
Nancy
by Nancy
Fri Jul 21, 2017 11:35 am
Forum: General Discussion
Topic: Was anyone's initial rash very itchy?
Replies: 2
Views: 561

Re: Was anyone's initial rash very itchy?

hi

I've never heard of the KD rash being itchy...but, an eval by a pediatric cardiologist might
be worthwhile :)

best,
Nancy
by Nancy
Tue Jun 27, 2017 7:40 pm
Forum: General Discussion
Topic: Can symptoms come and go for up to a year?
Replies: 1
Views: 466

Re: Can symptoms come and go for up to a year?

hi

that sounds unlikely...Kawasaki Disease is an acute illness that begins and ends with or without treatment.
by Nancy
Mon Jun 12, 2017 8:05 pm
Forum: General Discussion
Topic: law suits for kd kids..
Replies: 14
Views: 3744

Re: law suits for kd kids..

hi just my two cents... 1- there is no diagnostic test for Kawasaki Disease (impossible since the cause remains unknown), so the original urgent care center couldn't have tested for KD anyhow 2- I suspect being told if you hadn't taken him to the 2nd clinic, he might have died was a huge exaggeratio...
by Nancy
Wed Mar 29, 2017 7:20 pm
Forum: KD Stories
Topic: Kawasaki Disease 5 weeks after treatment, some symptoms returning?
Replies: 5
Views: 1385

Re: Kawasaki Disease 5 weeks after treatment, some symptoms returning?

hi

IVIG does not last for a year ! I think you need to be talking to pediatric cardiology, not the infectious disease docs !

nancy
by Nancy
Sat Feb 18, 2017 12:52 pm
Forum: General Discussion
Topic: New to KD
Replies: 1
Views: 712

Re: New to KD

hi

I would just call her pediatric cardiologist and ask :)
I'm not implying it is serious, I just remember those extra calls and emails that provided so much peace of mind!

best,
Nancy
by Nancy
Thu Feb 09, 2017 10:24 pm
Forum: General Discussion
Topic: Are low-grade fevers normal in recovery
Replies: 9
Views: 2793

Re: Are low-grade fevers normal in recovery

hi

Please contact your child's pediatric cardiologist for medical advice :)

thanks
Nancy
by Nancy
Wed Jan 25, 2017 8:09 pm
Forum: General Discussion
Topic: Post-treatment symptoms
Replies: 19
Views: 2202

Re: Post-treatment symptoms

hi

My son's pediatric cardiologist says that it takes at least 8 weeks for bloodwork values to drop back to normal levels, which
is why he doesn't do any follow up blood tests until then :)

So, I wouldn't worry right now at the end of January :)

take care
Nancy