Search found 4 matches

by momofthree
Mon Feb 08, 2016 9:57 am
Forum: General Discussion
Topic: IVIG
Replies: 1
Views: 379

Re: IVIG

My son was diagnosed 1 year ago and also was treated with IVIG. The doctor's and nurse's explained to us that it was infused so slowly (my son's took almost 14 hours to infuse) because of the risk of side effects. He was given Benadryl and Tylenol before the IVIG started to decrease the risk of any ...
by momofthree
Fri Jan 29, 2016 1:55 pm
Forum: General Discussion
Topic: Long-term arthritic pain
Replies: 11
Views: 1739

Re: Long-term arthritic pain

Saundra, I wish you the best with your son. I hope you find answers soon. So many of those mysterious symptoms without answers. My son is just 1 year post KD (he was almost 20 months when diagnosed). He suffered several times a week for about 6 months post illness with what I consider joint pain. Wi...
by momofthree
Wed Jan 27, 2016 4:00 pm
Forum: General Discussion
Topic: newly diagnosed
Replies: 3
Views: 918

Re: newly diagnosed

My son was diagnosed almost a year ago at 19 months. My son also had one infusion of the IVIG and was sent home 2 days later on a daily aspirin until our follow up with his cardiologist. He took several weeks if not more to really get back to his normal energetic self. He had those tear-shaped droop...
by momofthree
Tue Jan 26, 2016 11:22 am
Forum: KD Stories
Topic: Caden's story (Atypical Kawasaki Disease at 19 months)
Replies: 3
Views: 990

Caden's story (Atypical Kawasaki Disease at 19 months)

On this 6th Annual Kawasaki Disease Awareness Day I am sharing my son's experience with Kawasaki Disease in order to help raise awareness of this mysterious, rare illness. Caden’s story (age 19 months) Day1 Caden became sick on Wednesday Jan. 28, 2015. Several nights prior to the fever he began awak...