Search found 443 matches

by Nancy
Thu Feb 09, 2017 10:24 pm
Forum: General Discussion
Topic: Are low-grade fevers normal in recovery
Replies: 9
Views: 3367

Re: Are low-grade fevers normal in recovery

hi

Please contact your child's pediatric cardiologist for medical advice :)

thanks
Nancy
by Nancy
Wed Jan 25, 2017 8:09 pm
Forum: General Discussion
Topic: Post-treatment symptoms
Replies: 19
Views: 2693

Re: Post-treatment symptoms

hi

My son's pediatric cardiologist says that it takes at least 8 weeks for bloodwork values to drop back to normal levels, which
is why he doesn't do any follow up blood tests until then :)

So, I wouldn't worry right now at the end of January :)

take care
Nancy
by Nancy
Sun Jan 15, 2017 3:42 pm
Forum: General Discussion
Topic: Post-treatment symptoms
Replies: 19
Views: 2693

Re: Post-treatment symptoms

hi

Emailing his cardiologist is exactly the right thing to do ! I used to email my son's cardiologist frequently in the first
few months after he had KD and a few times a year after that for several years :)

Please let me know what he says !

Best,
Nancy
by Nancy
Sat Jan 14, 2017 10:50 pm
Forum: General Discussion
Topic: Post-treatment symptoms
Replies: 19
Views: 2693

Re: Post-treatment symptoms

hi Jessica, Please don't apologize ! Asking questions is very important :) Correct me if I'm wrong, but I think your son was diagnosed on Dec 10th ? If so, I wouldn't expect him to be back to his usual energy or style of playing until maybe the middle or end of February. It seems to take kids about ...
by Nancy
Thu Jan 12, 2017 12:31 pm
Forum: General Discussion
Topic: Post-treatment symptoms
Replies: 19
Views: 2693

Re: Post-treatment symptoms

hi Sounds like he has a good cardiologist ! It is hard for mothers to stop worrying....I used to email my son's cardiologist frequently for a long time :) But, it does get easier over time ! My son is now 22 yrs old and runs 10 miles a day, every day, all year round for fitness and played very compe...
by Nancy
Wed Jan 11, 2017 6:41 pm
Forum: General Discussion
Topic: Post-treatment symptoms
Replies: 19
Views: 2693

Re: Post-treatment symptoms

hi To be honest, these are questions for his pediatric cardiologist :) In my experience with my son who had an enlarged coronary artery that resolved within 3 months, his pediatric cardiologist gave him permission and encouragement to return to all his normal activities. He was 7 yrs old, so that me...
by Nancy
Mon Jan 09, 2017 8:39 am
Forum: KD Stories
Topic: Long term joint pain
Replies: 20
Views: 7480

Re: Long term joint pain

hi

Transient joint pain occurs in many children with KD. It resolves without treatment, usually within 4-6 weeks.

take care,
Nancy
by Nancy
Thu Dec 22, 2016 10:07 pm
Forum: General Discussion
Topic: Post-treatment symptoms
Replies: 19
Views: 2693

Re: Post-treatment symptoms

hi I'm not a medical professional, but there are several articles in the medical literature indicating abnormal liver function tests as being fairly common during the acute stage of KD. I think you said he was diagnosed on Dec 10th ? If so, that's only 12 days since diagnosis and many lab values wou...
by Nancy
Mon Dec 19, 2016 8:51 pm
Forum: General Discussion
Topic: Post-treatment symptoms
Replies: 19
Views: 2693

Re: Post-treatment symptoms

Hi Jessica, I didn't realize you weren't in the US, I apologize. You mentioned "Sick Kids", are you in Toronto ? One of the best KD docs in the world, who does a lot of KD research, Dr. Brian McCrindle is at Sick Kids. I'm glad to hear your son is feeling more like himself...it really takes about 2 ...
by Nancy
Sat Dec 17, 2016 6:54 pm
Forum: General Discussion
Topic: Post-treatment symptoms
Replies: 19
Views: 2693

Re: Post-treatment symptoms

hi Why is he being seen by a pediatrician ? They do not normally care for children with acute KD. He should be cared for by a pediatric cardiologist. Red eyes are the one of the last things to resolve after having KD. It is often more noticeable at night, as it is a form of photophobia. But, it does...
by Nancy
Sat Nov 26, 2016 6:05 pm
Forum: General Discussion
Topic: Kawasaki Specialist
Replies: 1
Views: 779

Re: Kawasaki Specialist

hi certainly the slow growth and thyroid issues are something to follow up on with a pediatric endocrinologist. However, there is nothing connecting these issues to a history of KD. Most of the physicians well versed in KD are pediatric cardiologists and deal with the cardiac complications of KD. go...
by Nancy
Fri Oct 21, 2016 7:24 pm
Forum: General Discussion
Topic: Kawasaki Disease – Post-hospitalization Symptoms
Replies: 1
Views: 987

Re: Kawasaki Disease – Post-hospitalization Symptoms

Hi The ongoing red eyes is a very normal part of Kawasaki Disease and takes the longest to go away, but it will go away. It does not mean anything is wrong with his eyes and you don't need to do anything for him. It can take 2 or 3 months. His sore wrist and feeling tired will also go away over the ...
by Nancy
Tue Oct 18, 2016 7:32 pm
Forum: General Discussion
Topic: Anxiety coming up on our one year anniversary and soy discussion
Replies: 1
Views: 815

Re: Anxiety coming up on our one year anniversary and soy discussion

hi I am a "world class" worrier, but let me reassure you that it gets easier ! My son had KD at age 7 years, on the 1st "anniversary" at age 8 yrs, he asked if he could take a beach chair and lunch box and go sit outside his pediatric cardiologist's office all day just in case "something" happened t...
by Nancy
Mon Oct 10, 2016 6:48 pm
Forum: General Discussion
Topic: Incomplete KD
Replies: 7
Views: 1705

Re: Incomplete KD

hi One really has to do one's own "homework" with Kawasaki Disease ! Any questions you have regarding symptoms should be brought to the attention of her pediatric cardiologist, not her pediatrician or family doctor ! I used to email my son's pediatric cardiologist about twice a week for the first mo...
by Nancy
Sun Oct 09, 2016 6:47 pm
Forum: General Discussion
Topic: Incomplete KD
Replies: 7
Views: 1705

Re: Incomplete KD

hi

sorry to hear your daughter was prescribed the wrong dose of aspirin, but please know that aspirin does not have any
effect on enlarged coronary arteries.
Aspirin is used in Kawasaki Disease as a mild blood thinner, to help prevent blood clots.

best to you both,
nancy