New to KD---son diagnosed and treated but still scared of relapse

General discussion regarding Kawasaki disease
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Masonsmom33
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Joined: Fri Jan 11, 2019 1:10 am

New to KD---son diagnosed and treated but still scared of relapse

Post by Masonsmom33 » Fri Jan 11, 2019 1:20 am

Hi everyone. My 3 year old son Mason was recently treated for KD. It started as a sore throat and fever which was diagnosed at urgent care as Strep Throat and antibiotics were given. After 3 days he was still running a high fever so we returned to urgent care where they changed his antibiotic and sent us home. His fevers still weren't getting better. So then I took him in to see his pediatrician who also said its just strep throat, it needs to run its course---he had strawberry tongue, rash all over, red eyes, high fever, diarrhea. I then took him to a different doctor who told us to take him to a Childrens Hospital, which was an hour away, to be seen for possible KD. They admitted him on a weds and treated him with IVIG on Friday and started aspirin. We were in the hospital for 6 days. They did an echocardiogram prior to us leaving hospital and everything looked normal. We have follow up echo's in 2 weeks and then 6 weeks. And he takes aspirin daily for 6 weeks and also iron supplement because he is slightly anemic. We just discharged from the hospital 3 days ago and Im so paranoid he will get KD again, Im also scared of Reyes syndrome with him taking the aspirin. Ive also noticed that his energy level isn't where it use to be and his appetite is down. Is this normal? Im scared to take him into public places because im worried about him getting sick more easily. Can anyone relate to this, any advice? thanks

katbeevers
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Joined: Thu Jan 10, 2013 9:05 am

Re: New to KD---son diagnosed and treated but still scared of relapse

Post by katbeevers » Tue Feb 12, 2019 10:20 am

Sorry to hear about your son and KD. I hope by the time you see this post your worries have been allayed. My son had KD when he was 10 and I understand the fear of taking him places where he could catch something. If he received the IVIG, he has received a good dose of antibodies which should help.

KateErickson
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Joined: Sun Feb 17, 2019 10:12 am

Re: New to KD---son diagnosed and treated but still scared of relapse

Post by KateErickson » Sun Feb 17, 2019 10:40 am

Hi. I am sorry to hear about Mason--this can be so scary for parents. If you haven't already, visit the Kawasaki's Disease Foundation page: http://kdfoundation.org/. On the "What is Kawasaki Disease?" page, you will find the following statement: Patients experiencing Kawasaki disease may experience tiredness, irritability and low energy for as long as eight weeks post the initial diagnosis. I was diagnosed with Kawasaki's Disease 30 years ago--there is so much more information available now.

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