LIFELONG FOLLOW-UP CARE FOR ALL

General discussion regarding Kawasaki disease
Nancy
KD Forum Leader
Posts: 671
Joined: Mon Apr 25, 2005 6:49 am

Re: LIFELONG FOLLOW-UP CARE FOR ALL

Post by Nancy » Fri Jul 20, 2012 2:22 pm

hi

Since you were originally treated at Sick Kids...I would email Brian McCrindle there...wonderful KD physician and some of his research
is concerned with long-term effects. He would be able to give the best advice !

His email is: brian.mccrindle@sickkids.ca

best
Nancy

Livlifefree4ev
New Member
Posts: 1
Joined: Mon Nov 02, 2015 5:57 am

Re: LIFELONG FOLLOW-UP CARE FOR ALL

Post by Livlifefree4ev » Mon Nov 02, 2015 6:00 am

Has anyone hd issues with a KD surviving child gaining weight unexpectedly? My son had KD when he was 6, now he is 11 and for about the last 2 years he has blown up like he is all swollen everywhere. Doctor says its just his build. None of my kids have ever done this and he doesn't eat anything to be like this.

Littlebean
25+ Posts
Posts: 43
Joined: Thu Apr 26, 2012 8:28 am

Re: LIFELONG FOLLOW-UP CARE FOR ALL

Post by Littlebean » Fri May 24, 2019 2:47 am

Yes...I have. My son was a agile and active and that at age 7 he suddenly bloated. I admit he is fond of eating but we done make fried stuff at home and fast food is very limited. How at age 9 he is close to a 100lb and has trouble with sports at school.
currently we are doing a cleansweep of the kitchen and removing all possible tempting stuff like cookies etc.

AlwaysResearching
New Member
Posts: 2
Joined: Sat Jul 13, 2019 1:51 pm

Re: LIFELONG FOLLOW-UP CARE FOR ALL

Post by AlwaysResearching » Sat Jul 13, 2019 3:15 pm

Livlifefree4ev wrote:
Mon Nov 02, 2015 6:00 am
Has anyone hd issues with a KD surviving child gaining weight unexpectedly? My son had KD when he was 6, now he is 11 and for about the last 2 years he has blown up like he is all swollen everywhere. Doctor says its just his build. None of my kids have ever done this and he doesn't eat anything to be like this.
Yes my son did as well, around 7 or so is when it started. He stayed that way through high school but then developed anorexia. He got through that and so far so good, he's at an extremely healthy weight for his age and height. He's 25 now. I hope that provides a bit of hope. :)

*As an aside, although he's at a healthy weight he does have heart issues. So far a bruit and a murmur, with testing coming up. No damage found in his arteries during his echos during his immediate post-KD.

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