Jack was unlucky in that his KD was atypical and, despite being hospitalized on day 2 and diagnosed on day 3, he didnâ€™t respond to treatment, including 3 rounds of IVIG. However, post KD and his heart attacks, he has done very well and, to look at him and watch him, youâ€™d never know heâ€™d been critically ill and has a heart condition. The first year after his illness, we walked on eggshells and checked on him several times a night. Now, life is relatively â€˜normal,â€™ though I get anxious every time he runs a fever, has stomach pains, or goes for his cardio check up. His MRI and stress test are scheduled for the first week of August, and Iâ€™ll let you know how things go.
Jack enjoys sports. He hasnâ€™t been on Coumadin since his aneurysms regressed, and has played on a recreational soccer team for the last few years. With the playing field getting bigger and the game more athletic and competitive for older age groups, we recently decided, upon his cardiologistâ€™s advice, that he should hang up his cleats. His cardiologist has recommended against competitive sports or rough/contact sports, so Jack is now trying baseball and a little recreational tennis. He skis a couple times each winter, but nothing too challenging.
How large are your daughterâ€™s aneurysms now? Is there a chance they may regress in the future?