Help! Can aneurysms grow after regression??

General discussion regarding Kawasaki disease
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Gullit
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Joined: Fri Apr 11, 2014 2:11 am

Help! Can aneurysms grow after regression??

Post by Gullit » Tue Sep 09, 2014 7:40 am

Hello everyone!
I'm desperate to get from some of You an answer to a very important question for me: Has anyone got an experience of an aneurysm growing after regression? My daughter had had a severe, misdiagnosed KD at the age of two months. She had a giant aneurysm on RCA (7mm but original artery size was 1,3mm) and a medium-sized aneurysm on LAD. LAD aneurysm healed after 8 months leaving clearly irregular artery wall, and RCA aneurysm looked like regressing for 11 months. Then regression stopped at 3,3mm. For the next 3-4 months it stayed stable, but last June echocardiography in National Centre showed enlargement to nearly 4 mm. 3 months later (yesterday) another echocardiography was done and the result is: RCA dilated to 4,3mm. For me - the RCA aneurysm is expanding. If U experienced or heard of sth like that, please, let me know. What could be an explanation for this?

Momcat
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Joined: Mon Jan 02, 2006 2:50 pm

Re: Help! Can aneurysms grow after regression??

Post by Momcat » Fri Sep 12, 2014 6:42 pm

My daughters aneurysms never did regress, but they did something very unusual and continued to expand over the years. She started with a 9mm in the LCDA and about a 5-6 (if I remember right) in the RCA. She was 6 years old when she had KD. She just had a triple bypass this year and the LDCA was 26.5mm and the RCA was about 18mm (?) and a couple of cm long. This is highly unusual, but she definitely had the KD specialists interested. In fact, I believe her case will be in a paper that Jane Burns just / or will be published soon.

Gullit
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Joined: Fri Apr 11, 2014 2:11 am

Re: Help! Can aneurysms grow after regression??

Post by Gullit » Thu Sep 18, 2014 5:47 am

So it is possible for them to grow in the late phase... Anyway, if it's uncommon - it still gives me hope, that it won't get worse.
Maybe the dilation is "unstable" or the docs measurments are not always the same. It seems that the only thing that i can do is only to wait for another visit and see how the things will change :( I've been following Your daughter's story and many others for the last 18 months on this forum and it seems to me, that with the good care prognosis for most of the childreen with severe KD are quite good, but we can never be 100% sure what can happen in the next months. The pediatric care in my country is worse than in the USA, therefore many childreen ( as my daughter) - are not diagnosed timely, and the problems start.
Thank You for Your response! There were many informations in Your other posts that I found very helpful to understand this awful disease.
All the best for You & Paige!

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