Lesions on pituitary stalk

General discussion regarding Kawasaki disease
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MaddysMom
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Joined: Fri Jan 16, 2015 2:22 pm

Lesions on pituitary stalk

Post by MaddysMom » Fri Jan 16, 2015 2:28 pm

My daughter had Kawasaki disease 10 years ago at the age of 6 and went thru 2 doses of immunoglobulin before they were able to get it under control as well as developing an aneurism in her right ventricle. She spent one week in the hospital and took blood thinners for one year. She was followed up by the rheumatology department at our childrens hospital till recently..the 10 year mark. She started developing severe headaches, to the point of waking up in the middle of the night and vomiting about 7-8 months ago. They did an MRI and found lesions on the pituitary stalk (which connects the pituitary gland and the hypothalamus). Has anyone else out there had any similar experiences? We are in the process of putting the pieces of the puzzle together and trying to determine what this is....seeing neurosurgeon, endocrinologists... and whether this is related to KD.

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