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My son passed away

Posted: Fri Sep 22, 2017 9:26 am
by TriciaElMaraki
Good evening,
my 7 year old son passed away on Monday 18th September.
He was diagnosed with Kawasaki disease in June.

Bloated tummy from time to time doctors said allergic to things like ketchup, mayo etc

Start-mid June:
swollen face doctors thought it was a very bad sunburn reaction that was atypical.
Rashes that looked like sunburn but strangely we're found on areas that were covered by his shirt and shorts
Fever at 39-40 degrees Celsius over a week
Random bruises especially on his thighs
Red spots/marks in the eyes the white part of the eyes
Peeled broken lips
Red tongue
Mouth ulcer

He always bruised easily and hands/fingers and feet skin peel often.
Bruised often as well but don't every boy of this age bruise often?

He changed from being very lively and cheeky boy to from time to time very zombie like to always tired and bored / not interested.

16th June blood test:
Creatine 0.6 mg/dl
SGOT 66 U/L
SGPT 56 U/L
Haemoglobin 8.2 g/dl
Hematocrit 31.6 %
M.C.H.C 26.0%
MCH 21 u-gems of hb
Platelets 410 x (10x10x10) / cu mm
ESR 70

28th June blood test:
HGB 10.6 g/dl
PLT 569 K/UL
ESR 35 mm/hr
SGOT (AST) 109 IU/L
SGPT (ALT) 95 IU/L
LDH 764 IU/L
Yeast cells +++ found in stools

Liver: 14cm

Mid August bad peeling of feet after sea coral incident

End of August he had a cold / borderline flu

Start of September: heavy migraine - blurred vision followed by bad headache, nauseous - upset stomach causing to throw up, feeling weak. On and off for 4 days

Last week
no migraine except one day he complained of headache.
He looked like he had a cold starting flu. Both my husband and I had the flu on and off since mid August.
Looked tired
But no loss of appetite

Sunday night tummy ache and watery vomit 3 times between 4pm n 3am

Monday morning:
He said he was fine but looked tired so told him to stay home.
He looked dehydrated but did not think it could b only from 3 throwing up session over 1 night. Kept on asking for water we gave him not too much in a go
He had a shower he looked fine
He complained of left arm painful, he said he was tired,
He said I love you papa, I love u maman,
Then he threw up through the nose and mouth - dark watery vomit
Tummy bloated
Eyes rolled
Fainted
Low faint seizure like movement

Weak pulse

CPR waiting for ambulance
Dead on arrival of ambulance
Pronounce dead at hospital

Re: My son passed away

Posted: Fri Sep 22, 2017 7:50 pm
by Nancy
There are no words for the loss of a child...but, know that my mother's heart goes out to you in your tragedy.
I cannot imagine what you are going through...but, hope that memories of his life with you live in your heart
forever and somehow sustain you in your grief

with deepest sympathy,
Nancy

Re: My son passed away

Posted: Fri Sep 22, 2017 9:21 pm
by TriciaElMaraki
Thank you.
I want to know more on the Kawasaki disease.
My son's test results showed a back to normal status start of July so we never thought it was Kawasaki plus we were not well informed on Kawasaki ... didn't know it could lead to death ...

Re: My son passed away

Posted: Tue Oct 03, 2017 11:05 am
by Teplongues19
OMG, i just feel for you, sending you all the support and love. I can't even imagine how hard is to loose your child. The only thing i really hope is that he is in a better place and that now he feel good! :( Kids don't deserve to feel pain and to pass away like this. My friend is having the same problem, with her kid and she is spending a lot of drug coupons trying to do something for this. I can't imagine how hard is this! :( Sending you the best thoughts. Stay strong for your baby ! <3

Re: My son passed away

Posted: Wed Oct 04, 2017 11:00 pm
by TriciaElMaraki
Thank you.
Any information that can help better understand what to expect from autopsy report please can you share?
Thank you