A Miracle was done!!

[Anahi]

Re: A miracle was done!!!

My 3 year old daughter (who was borned premature) was diagnosed with KD last December. We live in Germany but we are originally from Bolivia.

Everything started with a suspicious of the Flu. Her eyes were red, she had a strawberry tongue and cracked lipps. She had also fieber, but the 4 pediatricians we visited told us that the Fieber in the Flu can last for 10 days.

After 16 days with our princess was diagnosticaded with KD eventhoug she didn´t have all the symptoms at one she had to suffered the illness for almost a month (11/14/09 - 12/10/09) until the release from the Hospital . Unfortunally, she had already 3 big aneurysmes. After 2 days from the Immoglubin treatment , she was getting worse and her blood values were even heigher than before.

We are people who believe in God, and we prayed a lot for her, and after 4 days from the end of the treatment, the aneurysmes were smaller and the blood values were going down also. The doctors from the Hospital told us that God made us a Miracle.

After 2 months from the desease, she looks healthy and happy like she was before. Right now she takes Aspirin 3/day and a monthly visit to the Cardiologist for a heart ultrasound. In one year she has to have a Catheterization exam to see if there´s other damages.

Reading all the posted stories we realize that we are not alone, that many other parents all over the world have suffered what we had, and that you are the only one who undertand our concern.

Thanks,

[Momcat]

God is good! Please continue to update us!

[Anahi]

Hi,

I am worried as a Mother because, after 2 1/2 months from the disease my 3 year old daugther has changed her personality.

Before KD she was more confident in herself according to her age.

Today I had a meeting with the kindergarten teacher, and she told me that she cries a lot, she misses me, sometimes she is alone, sometimes she doesn´t want to play with other kids like she did before.She gets tired rapidly. She says, that my daughter is not the little girl she was before KD and I agree.

At home she has trouble sleeping, she wakes up in the middle of the night asking for company.

In her last ultrasound, the 3 aneurysms where not there, the doctors didn´t see even the irregularities from the coronary arteries that she had. She is still taking aspirin as precaution.

Have anyone of you experienced anything like these??

Thanks!!

[liquidambar]

She is little and being young she has a long time to overcome kawasaki's. Give her time!

If I had known what I know now I think my children would both have been healthier. What I know now is no sugar, no white flour, no white potatoes, watch the carbohydrates, follow the Atkins diet close. My daughter ate nothing but bacon when she came home at two years old from kawasaki's and she did very well (took a year) but she was fine. AND may have remainded fine if I had not feed her sugar! I feel that my son would have side stepped epilepsy too if I had only known.

There are two reasons there would be personality changes. One: she is not feeling well and still has an immune system that is wearing her down, or the next possibility will scare you to death - it did me and it is hard to face, but could be a brain injury.

Either way it will be hard to get medical help - to impossible.

If it is a brain injury it could manifest into anything from depression, to tourettes, to OCD, to ADD, to a wide range of autism spectrum disorders which includes - aspergers (high functioning, most times can not tell any thing is wrong/ social problems), PDD-NOS (still high functioning - learning and speech problems) to the more severe. To know these types of kids is to realize that Dustin Hoffman's character in "Rainman" was not high functioning but very severe. Yeah, they acted like he was high functioning on the movie, but he was not.

Do the diet, give her vitamin D and vitamin C. Live as healthy as you know how, and that means watch the carbs.